Programa de Pós-Graduação em Saúde, Ambiente e Sociedade na Amazônia - PPGSAS/ICS
URI Permanente desta comunidadehttps://repositorio.ufpa.br/handle/2011/10372
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Item Acesso aberto (Open Access) As necessidades de cuidar do filho estomizado: na perspectiva da teoria comunicativa(Universidade Federal do Pará, 2018-08-13) FERREIRA, Sandra Regina Monteiro; SANTANA, Mary Elizabeth de; http://lattes.cnpq.br/6616236152960399; https://orcid.org/0000-0002-3629-8932The children can get urinary or gastrointestinal stomas for a variety of causes, right after birth or at any time in their life. The most common causes are congenital anomalies and traumas that occur during development and are mostly temporary anomalies. It is estimated that one in each 33 babies, born with congenital problems in the world. Objective: know the challenges faced by the mothers with the care of their stomized son. Method: It is a descriptive study with qualitative approach having as theoretical support the communicative action of Habermas. The scenario of the study was Serviço de Atenção à Pessoa com Estomia, localized at Unidade de Referência Especializada Presidente Vargas in Belém of Pará. It was performed the collections of data through semi-structured interviews with mothers of stomized children properly registered at the service of attention for stomized people. It was performed the data’s analysis using the Bardin content technique. Results: It was been interviewed 12 mothers, whom two mothers live in Belém count and the remaining in countryside of the state. The age group of children was between 8 months’ to 8 years old, considering congenital disease the main diagnosis for ostomy production and the ostomy type more incident was colonoscopy, in relation to gender, six are male and six female, time of ostomy ranged between one month of life to two years old. The mothers’ age ranged from 18 to 46 years old, related to level of education, two mothers had full high school, one had unfinished high school, five had full middle school and four had unfinished middle school. Discussion: The results of the study indicated that mothers are not adequately oriented regarding their child's stomized care, revealing fear and anguish as the biggest challenges to changing and handling collecting equipment. The stomized child needs specialized care by the multi-professional team, and especially the nurse who is the professional responsible for health education, with guidance on care and education for parents regarding the exchange of equipment and the necessary care with the peristomal skin to preparing them to the returns home time with minimal conditions to care your child. Final considerations: the mothers experience the flaws in care provision for your stomized child and they reveal the fear as the main challenge in provision of healthcare. It was verified as inadequate The educational actions provided by nurses for the mothers when it comes to guide the care of stomized children, causing the unpreparedness of mothers and contributing to the inability to perform the expected assistance at home. It was expected that the construction of an educational material target for the care of stomized child could contribute with both mothers and nursing professionals in order to provide assistance with the view to quality of life and rehabilitation of the stomized child.