Navegando por Assunto "Caregivers"

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Acesso aberto (Open Access)
Cartilha “Aprendendo melhor a cuidar de si” para o autocuidado do cuidador de adoecidos pelo câncer
(Universidade Federal do Pará, 2022-06-04) VALE, Jamil Michel Miranda do; SANTANA, Mary Elizabeth de; http://lattes.cnpq.br/6616236152960399; https://orcid.org/0000-0002-3629-8932; LIMA, Vera Lúcia de Azevedo; http://lattes.cnpq.br/5247917929280755; https://orcid.org/0000-0003-0094-4530
The objective of this study was to apply the booklet “Learning better to take care of yourself” to family caregivers of people sick with cancer in palliative oncology care, as well as to investigate the burden on family caregivers and to analyze the correlation between the booklet “Learning better to take care of themselves” with the burden of these family caregivers. This is a descriptive study with a quantitative approach, carried out at the Ophir Loyola Hospital Palliative Care Clinic, with 147 family caregivers, in the second half of 2020. For the collection, two instruments were used: (a). Form for the characterization of caregivers and appreciation of the booklet; (B). Zarit Overhead Scale Questionnaire - Burden Interview. The collected data were tabulated, interpreted, processed and analyzed using descriptive and inferential statistics in Microsoft Excel® 2019 spreadsheets, in order to consolidate the information related to the data collected. The built database was organized and analyzed using the Statistical Package for the Social Sciences software version 24.0 in Windows 10 environment, with the results presented in tables and discussed based on the scientific literature. As a result it was obtained in the sociodemographic data that the caregivers are children (67 – 45,6%), female (86 – 58,5%), living outside Belém or metropolitan region (85, 57.8%), have completed High School (63 – 42,9%), are married (74 – 50,3%), mostly housewives (57 – 38,8%) and self-employed (45 – 30,6%), Catholic (71 – 48,3%) and have no income (81 – 55,1%). The average age of caregivers is 40 years old. Being a caregiver was a family decision (65 – 44,2%), exercising full-time care (89 – 60,5%), within a period of 1 to 5 years (69 – 46,94%), and sharing care with someone (89 – 60,5%) usually the brother (58 – 39,5%). The educational technology, the booklet 'Learning better to take care of yourself', achieved 91% acceptability. Regarding the general burden of caregivers, the majority presented Moderate to Severe burden (104 – 70,7%) and there was insufficient evidence to conclude that any of the variable’s gender, age group, health problems or length of care have any statistically relevant relationship with Zarit score (p > 0,05). As a conclusion, the booklet 'Learning better to take care of yourself', obtained 91% acceptability from family caregivers, who presented moderate to severe overload; Through the analyses, it was demonstrated that the acceptance of the booklet has a weak and inverse correlation with the burden, that is, the greater the acceptance of the booklet, the lower the burden presented by the family caregiver (alternative hypothesis - H1) and the burden will not be underwent statistically significant influence of the variables gender, age group, health problems or length of care, in this specific public (null hypothesis - H0). From the scores obtained in the question “do you have a health problem”, pain on the coast and use of alcoholic beverages did not show statistically significant differences. Although the other problems and habits were statistically significant. The Booklet, as an educational technology, strengthens and subsidizes the nursing care practice, legitimizing the continuity of the walk directed towards the new future care perspectives.
Acesso aberto (Open Access)
O enfrentamento à violência contra as mulheres com deficiência na associação de pais e amigos dos excepcionais (apae) e na associação paraense das pessoas com deficiência (appd)
(Universidade Federal do Pará, 2023-08-18) MAGALHÃES, Letícia Vitória Nascimento; SOUZA, Luanna Tomaz de; http://lattes.cnpq.br/5883415348673630; https://orcid.org/0000-0002-8385-8859; RAIOL, Raimundo Wilson Gama; http://lattes.cnpq.br/6271053538285645
The social movements of people with disabilities were essential for the achievement of protective norms for these people at an international and national level. The organizations of these movements and their construction in associations and entities promoted more rights and public policies of social participation for the disabled population. Based on the contributions of feminists, new categories associated with disability began to be discussed, such as gender, class and race, generating an intersectional perspective. In this sense, based on the serious problem of violence against women with disabilities, the research sought to understand how the Association of People with Disabilities from Pará (APPD) and the Association of Parents and Friends of the Handicapped (APAE) have acted in the fight against violence against women with disabilities. Therefore, the research was based on the inductive method from a qualitative perspective, based on bibliographic and documentary studies. The survey also included interviews with professionals from both associations to analyze the history and specificities of their actions with people with disabilities, especially women with disabilities who are victims of violence. Based on the Content Analysis, it was found, among other aspects, that both associations daily assist women with disabilities and their caregivers who have experienced various types of violence, despite this, it was understood that the theme of violence against women with disabilities is not part of a structured front in associations for the defense of people with disabilities in the state of Pará.
Acesso aberto (Open Access)
Funcionalidade familiar de idosos brasileiros residentes em comunidade
(Universidade Federal do Pará, 2017-07-21) CAMPOS, Ana Cristina Viana; REZENDE, Gabrielli Pinho de; FERREIRA, Efigênia Ferreira e; VARGAS, Andréa Maria Duarte; GONÇALVES, Lucia Hisako Takase
Objective: To evaluate the family functioning of Brazilian elderly people and test how determining factors influence it. Methods: Cross-sectional study with 2,052 elderly people based on data collected in the baseline of the study Aging, gender and quality of life (AGEQOL), with participants answering questionnaires about family dynamics, basic and instrumental activities of daily living (ADL and IADL), cognitive state and sociodemographic characteristics. Multivariate ordinal regression models and multiple correspondence analysis identified factors associated with good family functioning. Results: Most elderly people had good family functioning (76.3%), were married and lived with their spouse (55.5%), had more than six children and grandchildren (85.4% and 76.7%, respectively) and were independent to perform IADL (71.5%). Correspondence analysis resulted in three groups: good, moderate and poor family functioning, and a profile of elderly people with different socioeconomic conditions. Conclusion: It was possible to infer implications for practices and policies of family care with elderly members to meet their specific routine and life and health conditions.
Acesso aberto (Open Access)
Metas parentais de socialização da emoção em Vilas agrícolas e pesqueiro extrativistas no norte do brasil.
(Universidade Federal do Pará, 2021-07-07) REIS, João Victor Medeiros da Silva; CAVALCANTE, Lília Iêda Chaves; http://lattes.cnpq.br/4743726124254735
Based on the concept of socialization as a process of cultural transmission that involves the sharing of rules, values and parental beliefs, the present dissertation, based on the Ecocultural Model of Human Development, aimed to analyse and compare the participants’ emotion socialization goals and socialization strategies of emotion. 66 caregivers (mothers and fathers) participated of this research. They were from fishing-extractivist villages in the city of Bragança-PA, at the Mesoregion of the Northeast of Pará, and from agricultural villages in the city of Castanhal-PA, at the Metropolitan Mesoregion of Belém. Data were collected using the Participant Identification Form (PIF), the Sociodemographic Data Form (SDDF) and the Emotion Socialization Goals Questionnaire (ESGQ). Firstly, the results referring to the fishingextractivist villages, an unprecedented context of investigation, were described and soon after, the data related to the comparison between the fishing-extractivist villages of Bragança and the agricultural villages of Castanhal were described. Initially, it was found that in the emotion socialization goals of the caretakers in fishing villages predominated evocations of the category 'automaximization' (63.64%), followed by those referring to the category 'emotionality' (19.83%). About the conditions for children's development, caregivers responded mostly to evocations referring to the category 'caregiver-centered' (37.70%). In relation to what caregivers believed it was possible for them to do about the characteristics aimed, the emotion strategies, evocations of the category 'educating/guiding' predominated (56.92%). In the comparison between the two research contexts, emotion socialization goals in the ‘automaximization’ category predominated in both and in the the application of the Chi-square Test of Independence showed a significant association (p = 0.0021) between this category and the researched contexts, with emphasis on the caregivers from the fishing and extractive villages of Bragança that showed a higher frequency of responses in this category than those of the agricultural villages of Castanhal. Answers represented by the 'caregiver-centered' category also predominated in the two research contexts, but with no significant difference from the central categories in the comparison between the two contexts, as suggested by the results obtained by the Chi-square Test of Independence and Fisher's Exact Test. As for the actions of the parents themselves so that the children have the targeted characteristics, the caregivers in the two contexts presented responses mostly referring to the category 'educate/advise', but with no significant association between this category and the contexts surveyed, according to the Chisquare Independence Test and Fisher's exact Test. These results suggest that caregivers socialize their children based on the construction of an autonomous-relational self, with a tendency to value autonomy in expressing emotions and making decisions related to them. In addition, it is also expected that the child prioritizes emotional expressions that contribute to the harmony of interpersonal relationships and emotional interdependence in relation to the family, which the literature has shown to be a characteristic usually present in contexts that experience a process of transition from rural for the urban, with modernization of its economic and social structures.
Acesso aberto (Open Access)
Sobre a forma de ocupar-se de cuidar de pessoas sob cuidados paliativos
(Universidade Federal de São Carlos, 2019-01) PINTO, Aline da Cruz Cavalcante de; SILVA, Vanessa do Socorro Mendes da; SOUZA, Airle Miranda de; CORRÊA, Victor Augusto Cavaleiro
Introduction: Palliative care is a set of approaches to improve the quality of living for people who are out of the possibility of cure of a particular illness. Generally, they demand from family members the task of being caretakers, implying in their day-to-day occupations. The occupations are the various daily actions carried out by individuals, in groups and in the communities to which they belong, to fill the time and bring meanings and purposes to life. The occupational form understands what people do, how they do it, and in what circumstances they do. It is understood that caregivers of people who are in palliative care have a peculiar way of occupying themselves and with characteristic conditions. Objective: To understand the form of occupations of the main caregivers of people in oncological palliative care. Method: This is a qualitative research, carried out at a reference hospital in palliative care in the Northern Region of Brazil, at the Oncology Palliative Care Clinic (CCPO). An open interview was conducted with 20 family caregivers. Results: Outstanding changes in routine organization and dedication to caring for the loved one in palliative care. It also revealed that being a caregiver led to the difficult task of including, maintaining, and excluding day-to-day occupations. Conclusion: The study highlights the implications in the occupational repertoire in the condition of being a caregiver in palliative care and how the occupation is developed and drawing attention to the need for health professionals to direct their attention also to caregivers.
Acesso aberto (Open Access)
Vivências de pais e/ou cuidadores de crianças com autismo em um serviço de plantão psicológico
(Universidade Federal da Bahia, 2018) NOBRE, Diana da Silva; SOUZA, Airle Miranda de
Objective: to reveal the experiences of parents and / or caregivers of children with autism in a Psychological Service. Method: a descriptive, qualitative study with phenomenological inspiration, carried out with six parents / guardians by a nongovernmental organization located in Belém, Pará, Brazil. An interview and the versions of meaning were used for data collection. After analyzing the convergent points present in the versions of meaning, the analysis of the data was performed through the formation of three themes of meanings. Results: There was a formation of three themes of meaning: “mourning due to the diagnosis of autism”; “Difficulties with childcare” and “social isolation”. Conclusion: the stories and needs that led parents and / or caregivers of the children with autism to seek psychological services present singularities, however mourning due to the diagnosis of autism, difficulties with childcare and social isolation were the commonly shared themes
Acesso aberto (Open Access)
Vivências de pais e/ou cuidadores de crianças com autismo em um serviço de plantão psicológico
(Universidade Federal da Bahia, 2018) NOBRE, Diana da Silva; SOUZA, Airle Miranda de
Objective: to reveal the experiences of parents and / or caregivers of children with autism in a Psychological Service. Method: a descriptive, qualitative study with phenomenological inspiration, carried out with six parents / guardians by a nongovernmental organization located in Belém, Pará, Brazil. An interview and the versions of meaning were used for data collection. After analyzing the convergent points present in the versions of meaning, the analysis of the data was performed through the formation of three themes of meanings. Results: There was a formation of three themes of meaning: "mourning due to the diagnosis of autism"; "Difficulties with childcare" and "social isolation". Conclusion: the stories and needs that led parents and / or caregivers of the children with autism to seek psychological services present singularities, however mourning due to the diagnosis of autism, difficulties with childcare and social isolation were the commonly shared themes.