Redes pessoais de cuidadores de crianças com paralisia cerebral e desenvolvimento típico

Abstract

Research on social networks analyzes the relationships developed among actors who can be objects, people, institutions, events, among others. The study in question is considered an exploratory study and had as general objective to describe, analyze and compare the topologies of personal social networks of caregivers of children with cerebral palsy and caregivers of children with typical development. The sample was defined by convenience and consisted of 60 individuals equally distributed in both groups, both groups being attended at health services in the city of Belem. Data were obtained from the application of the Biosociciodemographic Inventory (ISD), authored by the Developmental Ecology Laboratory (PPGTPC-UFPA) and adapted by the researcher, which characterizes the sample and the Personal Networks Analysis Questionnaire, prepared by the Social Networks Analysis Research Group of the Development Ecology Laboratory of PPGTPC-UFPA, with which data were collected from social networks. The data were treated by descriptive and inferential statistics through the statistical packages SPSS version 20.0 © for Windows, Minitab version 17.0 application and the social network analysis software EGONET and UCINET 6. The results obtained indicate that there are similarities in the variables: intensity of the bonds whose predominance was the bond of strong intensity between the egos and their alters, and moderate to strong among the alters, these are for the most part female, and the egos and their alters meet predominantly with frequency a few times a week. Centrality measures showed similar scores. Significant statistical differences are found in the variables: link types, and N-clicks. DTs networks presented higher densities, and PC networks showed the type of link service providers (6.3%) that did not appear in DTs networks (0.2%) and the number of N-clicks greater or equal to 2 (two) was more frequent in PC networks. It is hoped that this investigation will stimulate reflection on the theme and its implications for the relationship between social networks, disability and family.