Cartilha “Aprendendo melhor a cuidar de si” para o autocuidado do cuidador de adoecidos pelo câncer

Abstract

The objective of this study was to apply the booklet “Learning better to take care of yourself” to family caregivers of people sick with cancer in palliative oncology care, as well as to investigate the burden on family caregivers and to analyze the correlation between the booklet “Learning better to take care of themselves” with the burden of these family caregivers. This is a descriptive study with a quantitative approach, carried out at the Ophir Loyola Hospital Palliative Care Clinic, with 147 family caregivers, in the second half of 2020. For the collection, two instruments were used: (a). Form for the characterization of caregivers and appreciation of the booklet; (B). Zarit Overhead Scale Questionnaire - Burden Interview. The collected data were tabulated, interpreted, processed and analyzed using descriptive and inferential statistics in Microsoft Excel® 2019 spreadsheets, in order to consolidate the information related to the data collected. The built database was organized and analyzed using the Statistical Package for the Social Sciences software version 24.0 in Windows 10 environment, with the results presented in tables and discussed based on the scientific literature. As a result it was obtained in the sociodemographic data that the caregivers are children (67 – 45,6%), female (86 – 58,5%), living outside Belém or metropolitan region (85, 57.8%), have completed High School (63 – 42,9%), are married (74 – 50,3%), mostly housewives (57 – 38,8%) and self-employed (45 – 30,6%), Catholic (71 – 48,3%) and have no income (81 – 55,1%). The average age of caregivers is 40 years old. Being a caregiver was a family decision (65 – 44,2%), exercising full-time care (89 – 60,5%), within a period of 1 to 5 years (69 – 46,94%), and sharing care with someone (89 – 60,5%) usually the brother (58 – 39,5%). The educational technology, the booklet 'Learning better to take care of yourself', achieved 91% acceptability. Regarding the general burden of caregivers, the majority presented Moderate to Severe burden (104 – 70,7%) and there was insufficient evidence to conclude that any of the variable’s gender, age group, health problems or length of care have any statistically relevant relationship with Zarit score (p > 0,05). As a conclusion, the booklet 'Learning better to take care of yourself', obtained 91% acceptability from family caregivers, who presented moderate to severe overload; Through the analyses, it was demonstrated that the acceptance of the booklet has a weak and inverse correlation with the burden, that is, the greater the acceptance of the booklet, the lower the burden presented by the family caregiver (alternative hypothesis - H1) and the burden will not be underwent statistically significant influence of the variables gender, age group, health problems or length of care, in this specific public (null hypothesis - H0). From the scores obtained in the question “do you have a health problem”, pain on the coast and use of alcoholic beverages did not show statistically significant differences. Although the other problems and habits were statistically significant. The Booklet, as an educational technology, strengthens and subsidizes the nursing care practice, legitimizing the continuity of the walk directed towards the new future care perspectives.